5 Hiaa
As a Medical test for Carcinoid Tumor by HappyCamper
- Performed On:
- 04/2009
This is the "24 hour urine" test. Certain foods are not to be eaten for 3 days prior and during the collection day.
0 comments |
Updated about 1 year ago
Already a member?
Sign In
HappyCamper hasn't asked any questions yet
Diagnosis Details: DX 2005, primary at ileum; Surgery 2006, intestines,liver,gallbladder; Sandostatin 2007 on; feel good; but tumors in my liver
Patient
Houston, TX
Patient Info: Female, 58, Diagnosed over 5 years ago
This is the "24 hour urine" test. Certain foods are not to be eaten for 3 days prior and during the collection day.
MRI is suppose to be good for observing liver tumors.
The recovery from surgery is tough for a while, even when all goes well. I was never in much pain, but I did have an epidural for about 5 days which would explain that. Two weeks after surgery I began to feel human again.
My body functioned fine after I recovered. I can eat well and exercise and lead a normal life. I believe this surgery will have a huge positive impact on my ability to live longer and more vitally than if I had not had it.
I have not had intense carcinoid syndrome, so it is more difficult to determine how it is helping my symptoms. I still have diarrhea from time to time, but the Sandostatin itself causes diarrhea, so I don't know if it is the carcinoid or the Sandostatin.
I do have liver tumors which continue to grow, even with the Sandostatin, but my understanding is that the Sandostatin is probably slowing the growth rate.
Getting a full and correctly administered injection is a problem with the procedure, even when the nurses have been fully trained. Novartis needs to improve the administration of this drug.
Things Tried
People Following HappyCamper (2)
